Today they have been doing breathing tests on Livi where they take her off the ventilator for brief periods to see how she is breathing on her own. They hope to get her off the ventilator within the next 24-48 hours. Her femoral catheter where the Prisma machine was hooked up will be coming out today, so she will no longer be receiving dialysis. The NG tube will be staying in. Her blood pressure has been down a little but has been holding well. Her heart rate has been in the mid 50s but they aren’t concerned. They just say it’s because she is so relaxed.
Her hair is falling out very rapidly. Every time you run your hand through her hair a handful of hair comes with it. Surprisingly though she doesn’t have any bald patches yet, it is just thinning.
Since she is getting so used to the pain medications they have to give her an extra shot of the medication into her IV when she is moved so it won’t cause her pain. The access needle to her port was leaking so they had to replace it.
She is still VERY swollen from all the fluids that were going into her body and the blood that bled out into her body. She has been having negative outputs (meaning she is discharging more fluid than she is taking in) the last day or two but it will take several days of negative outputs for all of the excess fluids to be removed and the swelling to go down. They put her on an egg crate mattress to help with the bed sores that are forming on her body.
Yesterday Aaron went to the water park for the third day in a row! Of course he loved every minute of it. Our neighbors Elaine and Jan took him. Elaine said she wasn’t sure who got more wet, Aaron or Jan!
We'll keep you updated, thanks for everything!
6 comments:
we love to hear the positive news!
That is so great! She just keeps moving in the right direction. It just shows you what a strong little girl she is. She is such a fighter, just like her mom and dad :). We love you guys so much and are so happy that each day she is getting a little better and stronger.
Love always,
Nikki
I am so happy! Things sound like they are going well! We're praying that things keep going that way!!
We love the good news. You guys are amazing. When you have moments that you feel like you can't be strong anymore, please know that so many people are willing to let you cry on their shoulder until you can face it all again, me included.
Livi's Family: I am Shelli Schuett and I live in Montana. I am the sister of Cheri Blomquist, aunt to Steph McMillan, and also aunt to Kristi Claycamp. I just heard about your little girl and have 2 boys about that age as well. I can't imagine what you are going thru and wish the best for you. I will add you in my prayers - I'll even try for 17 a day like Todd! Best to you!
We are so happy to hear about latest Livi's condition. She is such a strong girl and we are so proud of her.
We are keep sending our prayers for your little one!
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