Thursday, June 12, 2008

Through the faith of many...

As I sit at our computer trying to figure out what shouts of joy to write and then again how to spell them, I am extremely humbled. All I can say is THANK YOU! Olivia the brave is still in remission! All the prayers, all the good vibes, all the thoughts, all the prayer lists at temples across the country, all the love and all the faith has made our little girl strong. She is definitely one that will be remembered, no matter where the roads lead, as a precious child of God that brought so many people together in a great trial of our faith. And through this, each of us will be made stronger. Thank you!
I sit and contemplate what a miracle has just transpired. Doctors could argue that she didn't actually miss any of her chemo treatments this last week, they'd be correct. But when you stop and think about what her tiny body has had to endure, 6 days ago she was at the gates of heaven, she had multiple system failure, and nobody knew what was in store for her. But despite having to fight for her life, to simply be able to get her heart, lungs, liver and kidneys working again, she also had to be given the strength to continue to fight the horrible war deep inside her body to keep the leukemia at bay...and we did it. We all did it. Every prayer that was prayed, every tear that was wept, every knee and head that bowed, was noticed and felt and we pulled through a very crucial time.
Unfortunately the battle is not over. She is still very sick but is getting stronger. There is talk that she will be extibated tomorrow if everything goes well. The pancreatitis is still bad but not as bad as when she spiraled down. She's off and on insulin depending on what the latest blood sugar levels show. Other than that her medications have started thinning out. Her medications are Fentnayl and Versed (pain meds), Octriotide (for the pancreas), a few anti-biotics, 1 anti-fungal and A-hydrocort (steroid). She's also receiving nourishment through her central line called TPN (Total Parental Nutrition).
I just talked to Bill: the catheter that was in her femoral vein and the site of her dialysis, has successfully been removed. He just finished a round of Physical Therapy with her and he said "I could tell she was using her thigh muscle. But she didn't want me to do her arms so I stopped." We can only work on her right leg for a while until the swelling in her left leg goes down and it's not so painful.
I am home for the night and it feels good to be so. Yesterday, with Livi being so upset I really didn't feel like I could be away for the night. But today was a good day. Dad and I left the hospital at 5:30 and came home to spend some TLC with Aaron.
In closing let me share with you something very special that will be happening this weekend. Starting Saturday evening we are going to be holding a 24 hour fast. In our faith we fast, or go without food and drink, for a 24 hour period (two meals) as a way to show our faith in God so that He may more fully bless Olivia and her doctors. We go without food and drink to show God that we are willing to give up our temporal needs with faith that He will pour out his blessings upon those who we are praying for during the fast. This Saturday through Sunday (starting after supper) we will be fasting for Olivia to continue to be able to fight and make a full recovery from the pancreatitis and also for the doctors that they will know how to best aid/treat her towards this recovery. Also, specifically for Dr. Bernstein, Livi's Oncologist. That he may be lead to the answers he needs on how to further treat Livi for her Leukemia. (One of the main chemo meds can no longer be used as it is what caused the Pancreatitis.) We appreciate all those who would like to join in this fast. You do not have to be of our faith to do so. It is an awesome thing to be a part of something so divine in nature. And I testify to all of you who choose to take part that you will feel the difference in your day. Fasting along with continued prayers in your heart can and will bring about great miracles.
We love you all! Thank you!

10 comments:

Franko said...

Dear Rachel, Bill and all,
We are thrilled with the news. Just knew she could pull through with so much loving family around her. It sounds as if everything is being done that should be, along with medications to get her through this time. You will look back on this time and hardly believe it happened!! We send you all our love, hugs and kisses and are thinking of you constantly. Try to get some rest as it's the only way to function. Frank gave me practice!! Love to all of you.

Pat and Frank

Jessica said...

It is so great to hear such positive news! We have been so worried and concerned the past few days. We hope you all continue to feel strengthened by the many prayers we are offering daily in your behalf. We have been and continue to be blessed and strengthened by the associations we've had with your family. We love you!

williams family said...

Rachel, this is great news! Your words made me cry. Livi is very blessed to have such great parents who can show her what it truly means to walk in faith. She is such a strong little girl and is truly touching the lives of so many. She has endured so much this past week and I know her battle is not yet over, but I know she is not alone in her fight. We love you all! Give Livi a hug for us!

Garrett & Kristi said...

We are so thrilled to hear such great news! I'm sitting here in tears as read the update and think of the fact that Heavenly Father truly knows and blesses each of His children individually. I know there is certainly still a fight ahead, but the fact that Livi can still be in remission after so much dialysis and is making such great improvement is truly a miracle. This site helps us to feel close to you guys...thank you. We love you all...

Kristi, Garrett and kids

Starting Out... said...

My lil Missarooni, I'm coming to see you saturday morning. I hope you will be up to another girls slumber party in the hospital. I can't wait to see you miss. I love you and am so excited to come squeeze and hold your hand. See you soon! xoxoxoxo

Julie said...

What great news!! We are so happy for little Livi the missionary. Through all this all the people that were united in faith, prayer and love for your family.
The blog has been wonderful to help us feel close and really up todate. Thanks!!
We love you guys!
Dan and Julie

Jennifer Dresser said...

We are so excited to hear that Livi is making progress in the right direction! The last week has been very emotional for us as we have all been thinking and praying about your family; we can't even imagine how you have felt. Your last blog was so beautifully written, your faith is evident and for that I know the Lord is truly blessing you. I am sure Livi's name has been in many temples around the country; in fact, yesterday my sister submitted it in the Lubbock, Texas temple. I am grateful for the power of prayer, and for the sweet blessing of comfort. I know that's what is getting you through this difficult time. Give Livi a hug for us! We love you all! Jen, Jeff, and kids

brian said...

That is awesome! Meg and I are so glad to hear she is in remission. It must have taken some real spirit inside of her to push through and fight this. Keep up the posts!
-Brian

NancyD said...

Couldn't stop the tears from flowing as I read your latest entry... your family is an inspiration to everyone who knows you! Clearly you are blessed!
With much love, admiration & prayers,
Nancy & Mark Pierce

caracathryn said...

Rache & Bill, what good news! Livi is such a strong little girl--what an amazing sprit she has. You are all in my thoughts and prayers daily. Sending my love.

cara