Well, it's true...Olivia is in remission! YEAH!!! Unfortunately it doesn't change the course of action one bit. They said that they expect patients to go into remission within the first month or two, the tricky part is keeping them there. This is not to say that all of the prayers from heaven and earth weren't answered. Livi went in to remission after only 14 days, that's a great thing! Very much a blessing. Her blood counts were fantastic! Her ANC, which is the product of a calculated equation dealing with her blood cells was at 1200! It was the highest it's been since diagnoses! Her hemoglobin was borderline of needing a blood transfusion but he decided against it. Dr. B. said that the hemoglobin is the last thing to drop down and subsequently the last to raise back up. Part of me wanted her to get the transfusion just to help boost her energy level, but with any type of transfusion risks are introduced...the doctor knows best. She does have thrush, a yeast infection of the mouth, a side effect of the medications, and also a "regular" yeast infection that was causing her a lot of pain, hence the morphine in the I.V. She was also feeling really naseaus so they gave her a Zofran drip. It helped. Olivia has been quite...intellectual about the whole remission thing. She keeps talking about Grandma and "why couldn't she go in remission. Did she have leukemia cancer like me?" We explain it to her the best we can and talk about how sometimes Heavenly Father needs people in Heaven to help him there. She said, "Oh, he needed Grandma to help with all the kids that have Leukemia cancer?" I wiped a tear from my eye and said, "Yes. Because Grandma is in heaven she can help all the leukemia kids all the time, instead of just helping you when she comes to visit." Livi smiled and replied, "That's good." That is good huh? It doesn't make everything all better, but it sure does give a since of much needed peace.
Yesterday, Wednesday, was a pretty good day all things considered. We had scheduled Livi's appointment in the afternoon so that I could take Aaron to his gymnastic class. Livi was so anxious to spend her morning with Elaine and Jan that she ended up going over there 1/2 hour before we left for the class. She seemed to have had a great time as did I with Aaron. WHEW! He's quite the kid. SOOO much energy. Wanting to be here, there and everywhere all at once. His regular teacher wasn't there and since I only went the first time I didn't know what was really going on and neither did the sub but Aaron had a lot of fun, I did too. It was fun to spend that time with him.
4 comments:
That video just melts my heart. She is such a special little girl. It is so great to hear her in such good spirits. And Aaron has gottten so big. I can't believe how light his hair is, I thought for sure it was going to be dark like Bill's. Hope you guys have a grood day today.
Love you guys,
Ellison's
Livi on morphine is a funny girl. It is nice to see a bit of her quirky little Livi-ness coming through. Hopefully she'll keep feeling better and better.
LOVE the video....thanks for sharing....
What a trooper! She has amazing strengh and faith. If we could only all be like her. Thanks for sharing. We look forward to seeing you in a couple of weeks.
Love,
Randy
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